Welcome to Dystonia Living! I relocated my blog from my website since the blog my website company offers is not as user friendly as I would like. I am not the most tech savvy person, but I do love to learn so please bear with me as I get my feet wet with this new format.
Speaking of learning, that is what this blog is all about. I will be sharing information about dystonia and related challenges to hopefully help make your life a little easier. As you well know, quality of life is altered when dystonia intervenes, but it does not mean that life stops. We must go on; perhaps in a different way, but we must go on.
Adaptation and acceptance are probably two of the most challenging things we have to learn. After 15 years with dystonia, I am still a work in progress. My symptoms are better managed now compared to years past, but every day has its challenges. Some much more than others where I want to rip my hair out from the pain and muscles spasms and fatigue and…no need to go on. You know full well what it is like!
Please take a look around at the different posts. Feel free to comment and share with others. If you would like to learn more about me, there is a brief bio in the sidebar. Additional information is on my main website: www.diagnosisdystonia.com. You will find videos, support group resources, links to articles, and information about my book, Diagnosis Dystonia: Navigating the Journey. Please check out the reviews to see if it would be of help to you. The Michael J Fox Foundation has it listed as one of their suggested resources, which is really cool since there are no other dystonia books on their recommended list!
I wish you all the very best and thanks again for stopping by. If you like what you see, please subscribe to get updates sent to your email each time a new entry is posted.