Sunday, July 17, 2016

Welcome to my new blog!

Welcome to Dystonia Living! I relocated my blog from my website since the blog my website company offers is not as user friendly as I would like. I am not the most tech savvy person, but I do love to learn so please bear with me as I get my feet wet with this new format.

Speaking of learning, that is what this blog is all about. I will be sharing information about dystonia and related challenges to hopefully help make your life a little easier. As you well know, quality of life is altered when dystonia intervenes, but it does not mean that life stops. We must go on; perhaps in a different way, but we must go on.

Adaptation and acceptance are probably two of the most challenging things we have to learn. After 15 years with dystonia, I am still a work in progress. My symptoms are better managed now compared to years past, but every day has its challenges. Some much more than others where I want to rip my hair out from the pain and muscles spasms and fatigue and…no need to go on. You know full well what it is like!

Please take a look around at the different posts. Feel free to comment and share with others. If you would like to learn more about me, there is a brief bio in the sidebar. Additional information is on my main website: You will find videos, support group resources, links to articles, and information about my book, Diagnosis Dystonia: Navigating the Journey. Please check out the reviews to see if it would be of help to you. The Michael J Fox Foundation has it listed as one of their suggested resources, which is really cool since there are no other dystonia books on their recommended list!

I wish you all the very best and thanks again for stopping by. If you like what you see, please subscribe to get updates sent to your email each time a new entry is posted.


  1. Tom, where do I sign up to subscribe?
    Thanks June Simmons

  2. Hi June- To the right there is a box that says "subscribe by email". When you put your email in there, click submit. You will then get an email sent to you with a link you have to click on to verify your subscription. Please let me know if this helps or have any other questions. Thanks!

  3. Thanks Tom for the many opportunities you have created to help others.

    1. It is my pleasure Heide. I wish I could do more!